Stories of Hemophilia


Crystal struggled with heavy bleeding for 18 years, with heavy periods, with bleeding after childbirth, until finally receiving diagnosis and treatment for Von Willebrand’s disease. How can it take so long to get a diagnosis? Seven year old Jaden also has VWD and she might start heavy bleeding after the smallest cut. What does her family do to keep her safe? Sixteen year old Claire started having lengthy periods as a young teen, she was embarassed at school, and then she found out she has VWD. How has she learned to cope?

To view these stories, visit:  These stories are from Hemophilia of North Carolina and from SOAR (support for women and girls living with bleeding disorders). Video, audio and editing by Streamside Media LLC, owned by Susan Barco. September 15, 2012

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